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April 21, 2007

Back Home Again In Indiana

Taegan successfully completed her first set of 40 HBO treatments in Cincinnati and will resume her routine therapy sessions on Monday. (PT, OT, DT, CST, Speech, Nutrition Therapy, Hippotherapy, and Chiropractic care.)

I was a bit sad when the HBO sessions were complete because Taegan seems like a different child while receiving HBO. She was very content and social (which she hasn't been in recent months prior to HBO). Also, one of the best things to come from the HBO treatments was a major improvement in her sleeping habits. She was sleeping all through the night (except for 3 nights during the 40 treatments, but even then, she was only awake for an hour or so then!) She slept 8-10 hours per night, which was truly wonderful! She is such a different child when she has SLEEP! (Aren't we all?) In her 3 short years here on earth, she's never slept for an 8 hour stretch of time, ever!

Her appetite also sharply improved during HBO. I am positive she has gained weight. We'll see just how much when she meets with the nutritionist next week.

Unfortunately, she has resorted to her old sleeping habits. She's still pretty much a pleasant child, just a bit moody at times. I've recently learned that her moodiness and insomnia could be coming from a copper toxicity.

While at the Cole Center for Healing, I had a tissue sample sent to the lab for extensive analysis. The results were really quite shocking. Taegan has very high copper and aluminum levels, and has very low sodium and potassium. Her adrenal gland is also not functioning as it should be and is causing a glucose intolerance in her body.

I've purchased the suggested supplements to help correct the various imbalances in her body and hopefully we'll begin that regimen along with major dietary changes next week after consulting with her nutritionist.

Another thing I did not realize is that copper affects the ability of the muscles to function properly. It even affects the myelin sheath of the nerves (which is already a concern/problem area for people suffering from CP!) So, I'm hopeful that once the supplements and dietary changes correct her imbalances, we'll see some positive effects reflected in her mood, improved sleeping ability and muscle function.

She showed such positive improvement during that first week of HBO, especially with her muscle tone. She was able to get her left foot flat on the ground for the first time in her life. By the second week of treatment, her braces no longer fit properly (I am guessing it is because of the changes in her muscle tone, but I'm no expert!) She can no longer wear them because they rub blisters on her heels, especially her left heel. However, she isn't really putting her left foot down flat anymore on her own. I have to physically make her do it now, which still baffles me. When she walks, she's back to walking on her tip toes on the left, and is very shaky and unsteady.

My only rationale for this is that perhaps other muscles in her legs loosened up too, considerably, during HBO and she has never had to use those muscles before. I'm wondering if she's just unsure of how to use those muscles to steady herself and walk... they obviously would be weak from never being used before. Maybe we just have to focus on strengthening those muscles in order for all the muscles in her leg to work synergistically. I'm hopeful that her physical therapists might have some insight into what is going on. The HBO technician reminded me that it is possible to see continued changes from the HBO treatments up to 1-2 months after the cessation of treatment.

Her appetite continues to be healthy and she's even trying some new foods now. Of course, we'll be altering her diet quite extensively soon (no refined carbs and no sugars, including fruit and fruit juices.) Dietary and supplement recommendations were included in the tissue analysis process. They recommended Taegan be retested in 3-4 months, so that supplements can be adjusted or stopped altogether if no longer needed.

Meanwhile, we're continuing to raise money for Taegan so that she may continue to receive the HBO treatments. I'm hoping she can receive at least another 40 before she begins preschool in August.

I mentioned briefly in a previous post, I've met a very generous man who has a HBO clinic in North Carolina. He's offered 120 HBO treatments to Taegan for $6,000 (for a limited time, as his company is a cooperative.) The 120 sessions do not have to be done consecutively, but can be broken up into sets of 20 or 40 until completed.

I'm researching the possibility of flying there with Taegan when the time comes. There are several non-profit organizations out there (I believe that is correct) that offer free flights to parents/children of special needs, to help them receive the necessary medical care they require. I'm still just learning about this possibility....

Many thanks to the Women's and Men's Eagles Club of Fairfield, Ohio... they raised $505 during their recent benefit for Taegan on April 12th. They are a wonderful group of people who have taken a special interest in helping Taegan.

Taegan seems to be missing Jake and Alli... she looks all around the living room and kitchen calling "baby!!! baby!!!" and I think she's looking for her 6 year old friend/playmate Alli. She often times called her baby while we stayed there with the Ball family in Cincinnati.

Taegan was evaluated this week by the Special Services team for our local school system. They will use the results to qualify her for services through the school system when she starts in the special needs preschool program this August. We'll have her case conference to determine eligibility and to write goals in late May.

It doesn't seem possible, that my baby is ready to begin school!!! I still cannot believe she will be turning 3 in June! The NICU days really don't seem all that long ago... I still have dreams (nightmares!) about her time there. It absolutely doesn't seem like 3 years has passed since her traumatic birth. Where does the time go?

I'll post another update soon... ~Be well~

**Pictures: 1)Taegan inside the HBO chamber. 2) Taegan and Certified HBO Technician Scott Fuhr. 3) Cara, helping Taegan with the steps at the Eagles Club benefit on April 12th. 4) Alli and Taegan having fun in the bubble bath! 5) Taegan examining her new Barbie on Easter. 6) Alli, Cara, and Jake... Jeff was working when this pic was taken. Taegan adored him too!

1 comment:

Anonymous said...

Hoping all is well!....And sweety pie is looking good!