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December 18, 2006

Parent Testimonials

These parent testimonials have brought me so much hope and excitement that Hyperbaric Oxygen Treatments could help Taegan as well... that I keep re-reading them every few months, when hope starts fleeting.

I re-read them tonight because I needed that 'boost' again... Taegan's spasticity has become worse over the last 2 weeks, possibly due to her having the flu. When she stands, she is completely up on her tip toes on her left foot. It has become difficult yet again to even get her brace to go on her foot. She hasn't been able to wear her night splint for longer than 2-3 hours at a time these past 2 weeks as well. Serial casting is likely to happen in February, perhaps sooner if her spasticity keeps worsening. I'm so anxious to get her the HBO treatments, so maybe we can avoid the whole issue of CASTING altogether!!!

Many of these testimonials below mention how HBO took away their childs' spasticity. Also, they talk of how their children became verbal and began speaking in sentences etc. Just the thought of Taegan being able to talk to me brings tears to my eyes... If I had a Christmas wish, it would be for Taegan to receive the HBO treatments... and all the other things would fall into place... I just know it!

Testimonals taken from this web site:

Hi everyone:
I had to post this tonight. Today Michael and I were at his private OT appointment. I had previously spoken with his OT about the possiblity of us doing HBO and she informed me that the kid that she sees ahead of
Michael was currently in Canada receiving treatments. Well, today was Katie's first day back after 120 treatments. All I can say is that HBO is truly a
miracle. This little girl is 5 years old. Previous to HBO, she did not walk, talk, communicate or really do much of anything else. As her mother expressed to me today, she was pretty much in a vegetative state. She was full-term, suffered a stroke inutero, has pretty severe CP. Well, she is now walking, talking, running, playing, you name it. I could not believe it! I was so very glad to see this with my own eyes! And, her mom attributes all of this to HBO. How is that for a success story!

I am a pediatrician who has a four year old daughter with severe cerebral palsy. She has been receiving physical and occupational therapy from the age of 6 months. At the age of 3 she could not sit up unsupported. She was able to say about 35 words with difficulty. She screamed whan she was hungry and would say "miek" when she was thirsty. A distant relative had suffered a stroke which left him completely blind. He was able to regain some vision after hyperbaric oxygen therapy. He called me to tell me that he saw children like mine at the center and encouraged me to take my daughter there. I procrastinated because I wanted to see if there was any data that showed HBOT would work. I then finally enrolled my daughter in a study. Within the first week of HBOT
treatments my daughter was able to say "Boos Coos" pertaining to "Blues Clues" a children tv show and incredibly she did for 45 minutes. For me that was a small miracle. She had never focused enough before to watch a tv program. With the completion of 80 treatments, she speaks well over 1000 words and can say 4-5 word sentences. She can indicate her needs and is completely toilet trained. Currently she continues to make improvments daily. I have noticed that when she is receiving treatments she appears to be more and more focused and is able to learn much more. I personally believe that HBOT has made a huge difference in the quality of her life and ours. I believe in it so much that
I wanted to make this treatment available to other children and families. My new facility Hudson Valley Hyperbarics in Brewster, NY has the capability to treat all kinds of CP cases and medical conditions. Please feel free to contact me via email to discuss any of your childrens or families conditions.
Jo Feingold, M.D.
Medical Director Hudson Valley Hyperbarics

Hello everyone,
My name is Kim, my daughter is Gabriella, ( Gabby is 5 yrs old and was injured by the Hep B vaccine she recieved at one day old. She was diagnoised with static encephalopathy, global developmental delay, cerebral plasy, PDD, leaky gut, ect, ect, ect. She has had over 120 HBOT. This
wonderful therapy is like a miracle for her. She is now able to drink thru a
straw, eye contact improved, gross motor and fine motor skills improved, she can get into a standing position by herself, her balance has improved greatly, she can walk unassisted in the grass and other surfaces, she is climbing on the
furniture and the kitchen table! She is starting to perspire like a normal
child, she initiated and said new words, she is making more sounds and is trying to sing, dance and jump. I was wondering if there is a way that you know of to share information about this fantastic treatment. There are soooo many children and adults who can benefit from it. Has anyone written editorials for the newspaper or found another way to really get the word out about this treatment. It seems it is usually the last thing people try and sometimes parents are so involved with just managing their children and their circumstances that they don't have the time to research this option. If we could really 'go public' (major newspaper, TV, radio) with this, it would make it more available to people and the more people ask for HBOT, perhaps this will push insurance companies to cover the 'off label' diagnoises that can so benefit from HBOT.
Any ideas?
Kim Waldele

We just returned home from a doctors appt. We have been seeing the
opthamalogist before and after each 40 sessions of HBO. This is Patrick's 3rd
set of 40 to complete. Here are his documented results:
1st 40: Cortical blindness upgrade to high use of peripheral vision amd
severe cortical impairments in all central fields of vision
2nd 40: Went from strictly liquid diet to 3 meals aday. Gained 15lbs. grew
8'' in 1 10mths following. End of all gastric issues, removal of GI tube, and
all medication.
3rd set: Eye doctor said "Patrick no longer need to wear his glasses, 60%
improvement since Dec.2000 in farsightedness, normal focusing, responses all
normal in all tests!!!!!!!
Currently we are fundraising to finance the next set of 40 treatments. HBO
has been nothing short of a miracle for Patrick! I hope to hear from others
about their experiences. Jacki mom to Sean 11, Kathleen 8, and Patrick 4 our
vaccine injured angel.

We have done nearly 100 treatments. We did a set of 40, doing two a day for
20 days with one two-day break in there. We saw amazing results. Bethany was
8 at the time. She had just had a shunt blockage, a very bad one and was not
walking, talking, anything. After the forty treatments, she was walking again, better than ever and had begun talking in sentences (before she had only one or two word sentences). We saw incredible results with her sensitivities- she was able to stand a lot more noise, confusion, etc. without a meltdown. A few months later we did 20 more sessions, two a day for 10 days straight. This time, we saw more lessening of the sensory problems. She went from a child who could not stand to have her hands touched, to a little girl who wanted her nails painted! We later did 10 sessions, and saw no gains- I would not recommend doing only 10 at a time. We did 20 more later and saw more decrease in spasticity and more cognitive gains. Before we ever started treatments, I checked with our pediatrician about possible side effects. He assured me that HBOT is 100% safe- he also is a non believer in it, but can't deny the benefits we have seen from it!
********, mom to ********,10, spastic diplegia, hydrocephalus, CVI, optic
nerve atrophy, seizures and autism and *******, 12, nda from Alberta Canada

My daughter is 16 months old and I have recently finished 40 HBO
treatments. She had increased tone in her legs and low tone in her trunk.
Now, the PT has stated Anna Kate has lost the tone in her legs. She is now
sitting unassisted, will transfer from sitting to crawling and return to a sitting position. She is pulling up and can ambulate slowly behing a push toy ,however, balance is still a problem in standing upright position. She
now plays with toys without releasing them, is much more curious, claps
hands, motions bye,bye. Before HBO, she had to be propped in sitting position, could not hold toys without releasing them and she appeared sleepy and tired much of the time. I am amazed at the results we have seen.
We are taking a break presently but will return in about a month for more


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